Sunday, May 28, 2006

Autism ADHD, etc


Best part of the trip
Originally uploaded by Mauvis.

I've got a pic of tristan with these things and posted it. and it reminded this mom of this pic so much that she had to post it herself

This post involves comments made on the above picture and is a response to the comment above the one in which I reference this blog:

I've heard of the multi-diagnoses and misdiagnoses between the two.

So far the school system has done the primary evaluation of tristan. I need to get both of my kids evaluated further. had a bit of a bad experience with a therapist recommended by a dr we have a lot of faith in, so I'm a bit wary, I don't want to drag my kids through the number of bad therapists my husband says he went through as a child - I don't know for sure if they were bad or he just didn't like them, he has a lot of issues - My daughter's therapist treated her as a classic adhd/explosive child case and was convinced the child ruled our household when neither is true (though we are a household that negotiates and some more traditional paradigms might view that as letting the child rule) and recommended treatment that garnered a violent response from a nonviolent child - that meeting made me decide this wasn't the therapist for my daughter.

My son seems to be severely understimulated, to tell you the truth, unless it involves his head, which is primarily his ears (touch, not so much sound), and before he got the autism diagnosis, I was wondering if he didn't have an early case of adhd, that may have somehow affected him developmentally due to the early onset (complete speculation - I've never read anything of the sort). Having dealt with an adhd husband, I had noticed many similarities.

His father has been diagnosed both ADHD and bipolar disorder (another two I've heard are frequently confused with eachother, esp in children). I've been told by professionals that his older sister shows signs of both (she has a wonderful school system that has provided special ed services despite her academic excellence, that works on the areas she needs help with and she sees a social worker weekly).

He does have tantrums for no apparent reason. though we've learned it's usu related to tiredness, an inability to communicate and not getting enough attention - which are fairly normal reasons for a neurotypical 3 yr old to melt down, let alone one that's not talking yet - I started giving him something to drink or eat or putting him on my bed - a large place to lay down and family members don't go in there generally until bedtime - or laying him down near a fan or making sure I periodically look in his direction - whatever I guess appears to be the cause - and the tantrums aren't nearly as severe. there was one day I noticed him periodically watching me to see if I was paying attention and he'd start grumbling if I wasn't looking at him. He has two sisters that garner a lot of attention (esp one being an infant, and the other having her own issues) and extended family doesn't tend to interact with him a great deal (not that he sees them regularly). I've learned both my children seem to be far more intuitive than they let on and I'm sure he feels ignored.

He actually seems to like both light and heavy touch. he'll gently caress my hand against his cheek and almost never complains if I do so and he absolutely loves hugs. it's primarily the slowly developed communication, lack of social interaction with peers (he interacts up the wazoo with adults, if they pay attention, and he decides he likes them) repetative motion and severe developmental delay that seems to have given him the diagnosis. They also used an occupational therapist to evaluate him, in addition to a nurse, nutritionist, special ed teacher, social worker, and psychologist. We also noticed he ignored just about everyone who evaluated him except for the psychologist. so they didn't give him credit for eye contact (which has been discussed as overrated in this group) when he makes a ton of it, at least not really any less than the average person. The psychologist figured it may have been due to her dark hair (that happened to be a similar style to his godmother) - all of the women in his life at that time had brown hair, and the other people evaluating him had light hair. it also may have had something to do with her far more casual demeanor, and she seemed to know how to get him to interact. honestly now that I think about it, I should have found out if she takes patients or if she just works with the early on program...

Tuesday, May 23, 2006

coincidence?

I dropped by some stuff I forgot to send off with him to school this morning.

he was near me so I crouched on the floor held my arms out and said
"can Mommy have a hug?" His teacher said "bye Mommy" so he knew I
wasn't picking him up.

He hugged me, played with my hands for a bit, and I said "you can go
play now." and then he took off.

I've no idea if he was responding to my words, or if it was a
coincidence. but it'd be nice to think he'd been responding to my
words. I think he may have been, as he usually doesn't take off from
me like that. but he was in a large open area with plenty of room to
run around.

Sunday, May 21, 2006

morning boy

Definitely think he's naturally a morning person, even though he tends
to stay up late.

day before yesterday he fell asleep in the car at 5pm. didn't wake up
till 530 am (yay for me having to get up that early :s )

yesterday, he fell asleep 730-8ish and stayed asleep till 730-745 AM

He's in the absolute best mood. and was in a pretty good mood
yesterday too. no crying fits like he occasionally has. except for at
grandma teresa's when they tried giving him orange juice or water
after drinking sunny d (read: he wanted more sugar!). a cup of milk
calmed him down though.

When he was an infant, he'd get cranky if he wasn't in bed by 8pm.
he'd wake up just enough to eat overnight, and completely wake up at
6am for a feeding and change and then let me relax until 8 or 10am (ie
he either went back to sleep or laid quietly next to me - the eldest
was never up before 10am at that time unless she had to be). a couple
nights of being out late at the inlaws, so he couldn't go to sleep at
8pm completely ruined it. but occasionally he gets back on that
schedule.

Monday, May 15, 2006

Basketball

just posting up a storm, aren't I?

forgot. the other day.

He got home from school. had fallen asleep in the car. woke up. is
extremely grumpy and cries alot when he wakes up from a nap. -- oh, he
was just checking to see if I was watching and I wasn't :( ... -- anyway.
he was crying so I took him outside, cause he likes to be outside he
ran around sometimes wanted me to pick him up, still upset. so I
finally took him out to the basketball court and sat cross legged on
the ground. he curled up in my lap and tried to get comfortable and
complained off and on... then some boys came to play basketball. He
quieted at the sound of the ball hitting the asphalt. Apparently the
sound was soothing.

contemplation

all are asleep except me and him. he's dancing around the room
(currently has an empty pop can on the floor and is dancing around
it), testing textures, talking occasionally looking at me, it's like
we're speding time but not.

My house is a mess. I want to set it up so the whole living room is a
play place for him. but I need to clean and keep clean first. I'm just
wondering what this time would be like in a more preferable
environment. right now it is awful calming. he is magical.

he never ceases to amaze

he just approached me, took my hand, placed it on his cheek and put
his nose up to mine...

a priceless moment.

Sunday, May 14, 2006

Sleepy


HPIM0230
Originally uploaded by navidoll.

Wednesday, May 03, 2006

response without eye contact

well there was the sticking the hand out when I wasn't even talking to him...

As he was getting out of his high chair, I put my arms out and said
"tristan I give you a hug" and kept my arms out. didn't look at me
once but came straight over (he had to walk around a basket that was
on the floor so he wasn't looking at me till he approached me...
wouldn't have been as surprising if it were a straight shot for him.

Stealing the last of a sandwich

It's okay... she doesn't like the crust anyway:
Wait a minute, she didn't finish her sandwich


Yummy


he's stroking the window

All three! yipeee!


All three! yipeee!
Originally uploaded by navidoll.

Tuesday, May 02, 2006

wait a minute... that's mommy....

I think it took tristan a sec to realize it was mommy trying to get
him to stand up at school. He was going to curl up on some pillows and
I was asking him if he was tired and reaching my hand out to him and
when he looked at me and decided to get up.... I could just see him
come out of whatever he was thinking and realize it was mommy talking
to him. He got right up after that.

Monday, May 01, 2006

Blogging Against Disablism Day

I thought it was a cool idea.

I don't really put anything political here. this is about tristan. but it's a cool idea.